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Hashimoto’s encephalopathy/SREAT #HEAwareness

August 18, 2017All Day

The Hashimoto's Encephalopathy SREAT Alliance week to raise #HEAwareness with the wider rare disease community. The Hashimoto’s Encephalopathy SREAT Alliance is a 501(c)(3) nonprofit organization formed in 2012. It is HESA’s mission to collect, archive, and share information regarding Hashimoto’s encephalopathy (“HE”), also known as steroid responsive encephalopathy associated with thyroiditis (“SREAT”) or simply autoimmune encephalopathy (“AE”) with the public and medical professionals.

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DTP Awareness Day

August 23, 2017All Day

An annual day during DTP Awareness month to increase awareness of Digestive tract Paralysis. This includes conditions such as Gastroparesis, chronic intestinal pseudo-obstruction, colonic inertia, and other paralytic conditions of the GI tract. We will have advocacy activities and other creative events available to reach out to the public and media.

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Digestive Tract Paralysis Awareness Day

August 23, 2017All Day

A day during DTP Awareness month to focus on advocacy, increasing awareness, and research. A variety of contests and fun activities take place to engage the population in fun ways to increase awareness of Gastroparesis, chronic intestinal pseudo-obstruction, and colonic inertia. G-PACT provides educational resources and other ways to help others learn more and help others understand the need for a cure.

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Loeys-Dietz syndrome

September 19, 2017All Day

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Global FPIES Day

October 14, 2017All Day

Global FPIES Day is a day to bring our many communities together— families, friends and professionals– in the name of increased awareness of FPIES (Food Protein-Induced Enterocolitis Syndrome), worldwide. The message for this day is clear– all groups affected by FPIES need tools to help improve awareness, education and advocacy efforts in our local and global communities. Go to www.fpiesday.org to learn more!

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